Child and Family Patient Centered Outcomes Research Scholars Program
Accepting Applicants for August 2016
We are accepting applications for our Child and Family Patient Centered Outcomes Research Scholars Program. This mentored career development (K12) program for junior faculty focuses on patient centered outcomes research and comparative effectiveness research.
This K12 program supports junior faculty, who are on their way to building careers that include research directly linked to delivery systems. The funding for this program comes from the Patient Centered Outcomes Research Institute (PCORI) administered through the Agency for Healthcare Research and Quality (AHRQ). It builds on our fellowship training in the Harvard-wide Pediatric Health Services Research Fellowship, but this program is targeted at junior faculty members, rather than post-doctoral fellows. The three primary sites of the program are Boston Children’s Hospital (BCH), MassGeneral Hospital for Children (MGHfC), and the Department of Population Medicine at Harvard Pilgrim Health Care Institute (DPM). We link with a wide range of delivery systems and have a symposia series on key topics taking place throughout the year. The grant covers 75% of each scholar’s salary (up to a limit of $90,000) for 2-3 years, and provides additional funds (up to $25k annually) for scholars’ research development costs and individual training.
Our leadership team includes Drs. Jonathan Finkelstein (Director, BCH), Erinn Rhodes (Associate Director, BCH), Mark Schuster (BCH), Kenneth Mandl (BCH), Milton Kotelchuck (MGHfC), Karen Kuhlthau (MGHfC), Elsie Taveras (MGHfC), Matthew Gillman (DPM), Grace Lee (DPM), and Don Goldmann (Institute for Healthcare Improvement).
We are accepting applications through November 15, 2015 for positions starting on August 1, 2016. For this program, it is critical that scholars have primary interests in patient-centered outcomes and comparative effectiveness research as defined by PCORI. Applicants must have or concurrently apply for a faculty position at one of our primary sites. Please contact our Associate Director, Dr. Erinn Rhodes (email@example.com) with questions or to request an application form.
Content Director, National Resource Center on Lupus
Lupus Foundation of America
The Director of the National Resource Center on Lupus (NRCL) will be responsible for oversight of all health education content for the Lupus Foundation of America and the National Resource Center on Lupus (NRCL). The National Resource Center on Lupus is a digital hub for lupus health education information and a central point of connection for people whose lives are impacted by lupus and their healthcare professionals. The NRCL will be the main driver of health education content for the organization. The NRCL will be launched in March 2017.
The Director will work with Executive Leadership to ensure that education content provided across a variety of media align with the organization’s strategic objectives. This position reports to the Vice President of Education & Research.
The Director will:
- Deploy and update the current education content strategy which covers education content planning, workflow management, review and approval.
- Oversee the organization’s health education editorial staff.
- Oversee vendor relationships (e.g. print, translation, creative and content agencies).
- Closely collaborate with the Marketing and Communications Department to determine optimal methods and timing for health content creation, promotion and analysis.
- Ensure health education content located on the NRCL reflects the goals and objectives outlined in a 5-year grant from the CDC focused on disease awareness, decreasing time to diagnosis and creating national partnerships.
- Fulfills CDC contractual obligations as it relates specifically to the development of health education related/disease management tools and resources.
- Collaborate with the Marketing and Communications Department to promote content and create new partnerships that will highlight the Foundation’s work.
- Participate in a cross-departmental content task force with representation from each department. This task force will meet monthly and will help to inform decisions concerning organization-wide content development priorities, content integration, promotion, usage and distribution.
- Co-lead Education and Marketing/Communications cross-department meeting to establish content marketing priorities and evaluate impact.
- Supervise tracking, management, creation and strategy for all print inventory.
- Manage translation of materials into Spanish and other languages as needed and as appropriate.
- Ensure cultural and linguistic competency of all materials to ensure that tools, materials content and programs reflect the needs of various audiences impacted by lupus.
- Ensure that all content, programs and services, support, resources and professionally focused education are current and evidence-based.
- Builds capacity throughout the organization regarding health literacy principles and health content best practices.
- Assists the VP of Education & Research with proposals specific to budget planning and budget management related to Content activities. For example, print materials and translations.
- At least three years of experience in project management as well as experience in developing health education and publications
- Experience managing and mentoring staff
- Familiarity with project/content management tools and programs for workflow organization.
- Familiarity with scientific writing and PubMed as well as translating writing for a lay audience
- Familiarity with AP Style Guide and with health literacy concepts
Additional Salary Information: To be discussed upon interview
Internal Number: 1
About Lupus Foundation of America
The Lupus Foundation of America is the only national force devoted to solving the mystery of lupus, one of the world’s cruelest, most unpredictable, and devastating diseases, while giving caring support to those who suffer from its brutal impact. We envision a life free of lupus.
Our mission is to improve the quality of life for all people affected by lupus through programs of research, education, support and advocacy.
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